A few years ago, noticeable changes in her behavior were
becoming apparent; she was forgetful, she needed help doing daily tasks, she
would sometimes hear someone or see something…that wasn’t really there, she
would occasionally bump into furniture and even fell down a couple of times
because her balance was becoming unsteady…
The word dementia and Alzheimer’s started to get thrown around in
conversation… I remember thinking, no…NO
way…not Bobbie… I was probably one of
her biggest defenders. I mean, everybody
forgets this and that, or someone’s name…every once in a while. Everyone is clumsy at times and wakes up
wondering where that huge, hideous bruise came from! Bobbie wasn’t losing her mind; I
thought…everyone else is… Or, at least,
that is what I hoped…
It wasn’t long before Bobbie was diagnosed with Lewy Body
Dementia. …This type of dementia is
basically a mix between Alzheimer’s and Parkinson’s Disease. “Lewy bodies” are microscopic clumps of
normal proteins that – for unknown reasons – become abnormally grouped together
inside brain cells, causing permanent damage. We were told that she would progressively get
worse, as there are seven stages to the disease – each one causing more decline
in her mental abilities, as well as behavior and movements. The news was devastating…
December 3, 2011 - My Wedding Day!
Fast-forward to now…
For a little over a year, Bobbie has been living at the
nursing home… Let me just go on the
record by saying that I think the nursing home is, hands down, one of the most
depressing places on earth. I give major
props to the men and women who are strong enough and choose to work in these
environments. I couldn’t do it – or, at
least…I don’t think I could… I don’t
cope with death well – I know this… And,
this may sound blunt and insensitive, however, I most certainly don’t mean it
that way…but, let’s face it – people go to the nursing home to die… I can think of maybe just a handful of times
that I’ve been to visit her when there wasn’t a floral arrangement of some kind
sitting on the table in the entrance foyer…
It’s the first thing I notice when I walk through those doors…and my
heart sinks every single time.
I have never met someone who actually wants to live out
their last days in a nursing home facility – and I highly doubt that I ever
will. It represents that damned one-way
street, in the heart of a busy downtown, that no one really wants to travel,
but has no other choice… No one dreams
of being confined to sitting in a wheel chair or lying in a bed (much like one
you’d see in a hospital) all day long.
No one wants to depend on someone else to bathe, dress, feed, and wipe
their bottom for them because they are no longer able. No one wants to lose their independence,
modesty, and dignity…in such a way. No
one wants to sit day-in and day-out not even knowing which day it is, let alone
which month or year. No one wants to get
to the point where they’re doing everything they can do to communicate, only to
have the words come out in a jumbled mess.
NO ONE WANTS THAT…
But, we don’t always get what we want, do we??? Just like driving on one-way streets – you
have no choice. Bobbie had no
choice. Her family had no choice. The same for Jordan…he had no choice. …We have no choice in how or when our story
ends…
This makes me wonder…
Which is worse – dying young or living old?
I’ve asked God “why?” so many times… I’ve been taught that everyone is put on this
earth to serve a purpose – and I do believe that wholeheartedly. But, I struggle to understand the logic
behind how some people are only granted a few years (if that) to live out their
purpose, while others are left to live well beyond what we consider desirable
years… What purpose is there behind a
young child dying? What purpose is there
behind someone living to the point of being bedridden? Why do bad things happen to good people? …Why does God allow these things to happen? Why, why, why???
Do I have an answer for this? No. I
wish I did… All I know is what I’ve been
told many times – “He allows bad things to happen for reasons only he knows.”
I once was talking with a friend and I remember saying, “When
I get to Heaven, I sure do have a lot of questions to ask God.” I will never forget her response… She said, “Judith, when you’re standing at
the pearly gates of Heaven, starring at God, himself, your questions really won’t
matter anymore!”
So, when I really think about it…would knowing God’s reasons
now make it any easier to understand?
Probably not… We walk by faith,
not sight, and someday everything is going to make sense – we just have to
believe and find hope in that.
The only pro I can come up with for dying young is solely
based on vanity. Those who die young don’t
ever have to endure the agonies that come along with growing old… However, as I weigh the pros and cons of
dying young versus living old, I keep thinking of this quote:
"Do not regret growing older. It's a privilege denied to many." - Unknown
Sharing A Laugh. - Grandparent's Day - September 9, 2012
Cupcakes On My Birthday.
Christmas Day. - 2012
Watching dementia steal my Bobbie away has been an extremely
sad process to endure – not just for me, but for my entire family. I am constantly reminded that it is (and has
been) hard for Bobbie, too. Watching her
struggle to get her thoughts out in words that make sense is difficult enough…but,
watching her get frustrated and emotional because her mind is still “well”
enough to know that what she is saying doesn’t make sense…is heart wrenching.
…This is where understanding, compassion, and patience –
that can only come from God – comes into play.
Maybe, that is the lesson to be learned…
Maybe, that is the purpose??? Although,
I still can’t convince myself 100% that her suffering is perhaps for a greater
good…but, I do wonder…
All that I do know…is that little by little her mind slips
away into the unknown…but I know that at the core of her being – she is still
and always will be – my Bobbie!
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